Susan Needs Our Help!

...and time is of the essence. If you don't know what it is, please go read about Barth Syndrome. We have very close friends who have a son, William, with Barth Syndrome. With the season of thankfulness in the air, they are thankful that he is one of the healthiest boys in the world with this genetic disorder.William is in an elite group. There are only around 100 boys in the world who have been diagnosed with this disorder. One of the other elite members in this group needs your help.Susan Hone's son also has Barth Syndrome. The Hone family lives in Canada and they are trying to win airline miles to be able to attend the Barth Syndrome conference this summer in Florida. This conference is very important as many physicians across the world attend. The boys are seen by the top docs in this field.Please take 2-3 minutes and read about their family and vote for them to be able to go to the conference. Voting ends December 3rd! And say a little prayer for all of these boys.

I found out tonight through my Sunday school prayer chain that one of the boys, Aldo, received a heart transplant on Thanksgiving day; talk about a family being thankful. I have been monitoring the rankings since Juju sent me her e-mail, and Susan is catching up. It would mean so much for her family to be able to attend this conference. So right now, I need for both of you who read my blog to go to the link and vote for Susan. Thank you, thank you, thank you!